Article published Open Source in: Journal of multidisciplinary healthcare 2017; 10:145-155
Authors: Caroline Marr, Alison Seasman, Nick Bishop
Content:
Key Areas of Care:
Medical Treatments:
- Doctors may use medications like bisphosphonates to strengthen bones and reduce the risk of fractures.
- They also treat related issues, like pain or constipation, which are common in people with OI.
Surgery:
- Surgery may be needed to fix broken bones or correct bone deformities.
- Surgeons use special techniques, such as inserting rods inside bones, to make them stronger and more stable.
Physical and Occupational Therapy:
- Therapists help with exercises to build strength, improve movement, and support daily tasks like dressing or getting around.
- They may suggest equipment like custom wheelchairs or walkers for mobility and independence.
Psychological and Emotional Support:
- Living with OI can be challenging. Psychologists help patients and families cope with fear, anxiety, or sadness.
- Social workers assist with practical issues, such as accessing resources for school, home modifications, or financial support.
Diet and Nutrition:
- A healthy, balanced diet with the right vitamins and minerals supports bone and muscle health.
- Dietitians also help with managing issues like constipation or weight, which can affect mobility.
Life Stages and Special Considerations:
Babies and Toddlers: Special care in handling and positioning is important to avoid fractures. Therapy helps them reach milestones like sitting or standing.
Children: Activities and school participation are encouraged with proper support to help them build confidence and independence.
Teenagers: They are guided through the challenges of growing up with OI, including preparing for adult care and handling new responsibilities.