Faculty / Content approved by
Dr. Evert van Velsen, Erasmus University Rotterdam, NL
Speaker: Dr. Evert van Velsen
Duration: 60 minutes
Summary:
In this session about Hypophosphatasia (HPP), Dr. Velsen addressed the challenges faced by patients with this rare bone condition, emphasizing the need for better understanding among healthcare providers. The discussion highlighted the significant impact of HPP on quality of life, including issues like chronic pain, digestive problems, and neurological effects. Participants shared personal experiences and emphasized the importance of community support, as well as the challenges of navigating the healthcare system. The session also underscored the role of citizen science in identifying symptoms and advocating for better research and treatment options. Overall, it was a collaborative effort to enhance awareness and care for individuals affected by HPP.
Key Take Aways:
This webinar will provide valuable insights into:
- the cause of HPP
- the most common symptoms covering HPP in children as well as adult age
- clinical treatment options
- long term outlook for Quality of Life with HPP