Journal: Otology & Neurotology, Vol. 44, No. 7, 2023
Authors: Thadé Goderie, Sebastian Hendricks, Chiara Cocchi, Diane Maroger, Dagmar Mekking,
Isabelle Mosnier, Angela Musacchio, David Vernick, and Cas Smits
License and source: This article is licensed under the Creative Commons Attribution 4.0 International License (CC BY 4.0).
https://creativecommons.org/licenses/by/4.0/
Original publication available via PubMed
Summery: The following summary and key takeaways were prepared by the C4B team to support understanding of the scientific publication and are intended for informational purposes only. They do not replace the original article or professional medical advice.
The International Standard Set for the Assessment of hearing in OI is an important to step to help understand and adress hearing loss in OI. The set was developed by an international team of experts interested in OI including patient representatives.
Key Take Aways:
1. Regular hearing tests are essential for people with OI to identify hearing loss early
2. Clinical testing should observe the recommended standards. Also patient reported outcome measures should be taken.
3. Collecting consistent outcome measures will be an important opportunity to better understand and adress hearing loss with OI in the future.
4. The Hearing outcome measures have been integrated into the Key4OI Outcome measurement set and can be collected using the Key4OI Registry.