Speaker: Frank A Bangert, Psychotherapist
Duration: 20 minutes
Source: Recording of a session at the Online Conference “Quality of Life 4 OI 2024”
Key Take Aways:
1. Personal Insight: Bangert shares his experiences with Osteogenesis Imperfecta (OI) and its psychological challenges.
2. Fear and Stigma: Patients face fear of injuries and social stigma, intensifying their mental burden.
3. Trauma’s Impact on the Brain: Trauma affects areas like the amygdala, prefrontal cortex, and hippocampus, impacting emotions and memories.
4. Support and Treatment: Psychotherapy, support groups, and proper diagnosis are essential for managing OI’s psychological effects.
5. Awareness: Greater sensitivity from caregivers and professionals is needed to support OI patients effectively.
